Skip to content
JDVS
  • About
  • JdVS Foundation
  • Community
  • Events
    • 2023 JdVS Summit-Charlotte
    • 2025 JdVS Summit-Chicago
  • Resources
    • Treatment Guide* for Patients and Families
    • Clinical Considerations* for Medical Professionals
    • Medical Advisory Board
  • Donate & Support
  • Register
  • Register
JDVS
  • About
  • JdVS Foundation
  • Community
  • Events
    • 2023 JdVS Summit-Charlotte
    • 2025 JdVS Summit-Chicago
  • Resources
    • Treatment Guide* for Patients and Families
    • Clinical Considerations* for Medical Professionals
    • Medical Advisory Board
  • Donate & Support
  • Register

Community Connections Calendar

CommunityConnections

Zoom links for all Community Connections events will be sent via email. To make sure you are on our distribution list and included in our registry please email info@jansen-devries.org

Parent/Caregiver Community Connections

    • September 17, 2023 General Connection: 10 – 11am New York EST / 2-3pm GMT / 3-4pm London  
    • October 15, 2023  Autism and Anxiety: 10 – 11  am New York EST / 2-3 pm GMT / 3 – 4pm London 
    • November 19, 2023 TBA: 10 – 11 am New York EST / 3 – 4 pm GMT / 3 – 4 pm London 

Sibling Community Connections

If you have questions about the sibling community, email Keeley Sorokti at keeley@jansen-devries.org

    • September 17, 2023: 11am – 12pm New York EST / 3-4pm GMT / 4-5pm London  
    • September 24, 2023:  3-4pm York EST / 7-8pm GMT / 8-9pm London  

JdVS Champion Connections (4th Sunday of each Month)

A JdVS Champion is someone diagnosed with JdVS

    • September 24, 2023: 11am – 12pm New York EST / 3-4pm GMT / 4-5pm London 
    • October 22, 2023: 11am – 12pm New York EST / 3-4pm GMT / 4-5pm London 
    • November 26, 2023: 11am – 12pm New York EST / 4-5pm GMT / 4-5pm London 

 

Latest News

  • Meet Uzziah July 28, 2021
  • Meet Ryan February 24, 2021
  • Meet Noah February 19, 2021
  • Meet Wells February 19, 2021
  • Meet Daniel January 9, 2021

Your support matters

Make a difference and support the JdVS Foundation's mission.

Donate
Get involved
Boys helping on climbing wall.

About JdVS

  • PPM1D Gene
  • Genetics 101
  • Common Questions
  • Where We Are

JdVS Foundation

  • Mission
  • Board Members

JdVS Community

  • Connect Online
  • Family Registry
  • Faces of JdVS

Resources

  • Patients and Families
  • Medical Professionals
  • Medical Advisory Board

Donate & Support

  • Fundraising
  • Volunteering
  • JdVS Store
  • Tax Deductible Donations

Get in touch

Join our community, donate, or volunteer today!

We look forward to meeting you.

Email Us

jdsv-logo@2x

© 2021 JdVS

Privacy Policy    Accessibility Statement

Website by Yoko Co

Disclaimer

Disclaimer: The information provided on this website is to inform and help families cope with the unexpected change in their life due to a JdVS diagnosis. The information contained on this site is not intended to replace information you have received from doctors or other health professionals. We are not doctors, we are parents of individuals diagnosed with JdVS.

Scroll To Top
By continuing to browse the site you are agreeing to our use of cookies and similar tracking technologies described in our privacy policy.I Agree